Friday, February 27, 2009
Monday, February 23, 2009
Reed's first carseat experience. He went right to sleep when we got in the car. I hope that Reed is rubbing off on Braden for how to behave in his carseat. Braden likes to cry for a few minutes then tires himself out but he went right to sleep with no fight that afternoon. Our sweet boys home at last together. They better get used to hanging out with one another since they will be confined to home for February and March:-) Reed has to stay away from big crowds at first but can have visitors as long as they remember to wash their hands. However, we need to keep him away from little kids since they are little carriers of all kinds of sicknesses. How in the world am I going to balance both of these boys as the same time???? I am super excited to have Reed home, but I am a little stressed about giving the care and attention they both need. I am going to have to suck it up and just be able to ask for help. Those cute green and white striped polos on the back of the chair were the boys' coming home gifts from the Crawfords!
I will need to take some pictures of the boys in their Sunday clothes since they will not be able to wear those for a while. I will save that for a day that I have too much time on my hands....so don't be expecting those pictures any time soon. Reed taking his little bottle. He is practicing this along with getting milk through the tube. Please pray that he will continue to improve in taking a bottle and not need his tube much longer. We need this little guys to put on some pounds! Reed chillin' in the boppy. Doesn't he look happy to be home?! Braden chilin' on the couch catching up on some Baby Einstein that he has missed going back and forth to Vandy every day! Braden was carrying on a little conversation with Reed trying to tell him what all that he has missed out on at home. I am so excited to watch them grow and watch their bond as brothers grow strong! This was us hanging out on Saturday. The boys once again in Polo!
So I had this bright idea to take the boys out for a stroller ride since I bought a double jogging stroller. It was a little cool outside, but Ryan and I bundled them up to go out. As you can tell below, the trip did not go so well! Ryan and I got them in the stroller, Reed starting crying, Braden then started to cry, but I thought they might quit when we started strolling. Wrong!! We made it maybe to our next door neighbors driveway and turned around! So here were our Two Angry Bears that both went to sleep five minutes after we got in the door. That's not a bad trade-off if they would both go to sleep each time:-)
Today, Reed had his first check-up with Dr. Dodd. He will go every Monday and Thursday for 3 weeks, then just every Monday for 6 weeks, then every other week and so on and so on! He did very well while getting his echo done and his EKG. He threw a fit when he was getting his temperature taken..go figure! Hisheart still looks great. We still need prayers for this little guy because he is never in the clear with his new heart! We are so very very thankful to have him home with us!
Friday, February 20, 2009
We owe huge thank you's to so many of you for bringing us food, helping with Braden, visiting Reed in the hospital, and the list could go on and on. But the most important thing that we need to thank you for is praying for our sweet little Reed. It is amazing to step back and see what this little 3 month old has already been through in his life and we owe God all of the glory!
So here is what I would love for each of you to do that have followed this blog and prayed for our family during these times. I would love for you to either leave a comment, your favorite scripture, a note to Reed, or just to simply say you were praying him during these past 100 days.
Now for those of you like my nanny who do not know how to leave a comment, here is what you will do:
1) Click on the pink link below that says # comments.
2) This will open a new page where you will see a box titled "Leave your Comment"
3) Type what you would like
4)Then type the word verification word. This is just simply typing the word that you see above the word verification box.
5)Under "Choose an identity," click the button for Name/URL and just enter your name. You do not have to type in a URL. OR you can click anonymous if you would like to.
6)Finally, click "Publish your Comment"
I am going to get a book made from this blog, and I would love for our boys to know who all prayed for the two of them, especially for Reed's surgery! I know that there are a lot of prayer warriors out there and I would love to see how many people that God used to help us get through this time in our lives. THANK YOU FOR YOUR PRAYERS!!!
Wednesday, February 18, 2009
1) Take as much by bottle that he will take in 20 minutes. Whatever is left from the 60 cc's is then put in his bag that goes through the tube. The remaining amount will be given slowly to him in the remaining three hour time interval.
2)Our ulitmate goal is for hi to take all 60 cc's and have no need for the tube feedings. This will probably be a slow process that we will work on.
Reed and Braden still love this mobile. My mom even ordered one on internet since they love it so much. Who knew that birds could be so entertaining!
Reed was worn out today after his bottle feeding!
Reed has really discovered his little fingers this past week. This is one reason we have to be really careful about washing our hands because he loves to put everything in his mouth right now!
Monday, February 16, 2009
Now for the fun part! He has been spitting up and throwing up a couple of times today. When Dr. Dodd, the heart transplant doctor, was checking on him today, he totally lost it. He was madder than I have ever seen a baby and nothing would calm him down. His heart rate got all the way up to 203 beats per minute and he was screaming like he was in a lot of pain. I was standing there feeling about as helpless as a mom can feel and getting quite worried. Finally, I sat him up, rubbed his back and he threw up. After that, he was totally fine and went right to sleep. Dr. Dodd said that it was a very good sign for his heart function that it could get that high, come back down and regulate itself. She said that a lot of transplanted hearts just stay at one level and do not do a good job regulating themselves. I was sitting there thinking to myself "a heart rate of 203, are you crazy... but I'm glad you think that is a good sign" HA!!
Now let me try to explain why the doctor thinks he did this today:
Reed gets medicines at 6am, 10am, 2pm, and 10pm every day. Reed is on a medicine called lasix to help him pee off extra fluid from his body which in return causes his electrolytes to be low causing his mag. and potassium levels to be low. Therefor, Reed has to get extra magnesium and potassium which can cause your stomach to have sharp pains. They increased his magnesium input this past Friday which is when he began spitting up his milk. This has gotten progressively worse over the weekend. So it is going to be a balancing act to get his medicine right along with him keeping his milk down. Please pray that the doctors will have the wisdom to figure out what works for Mr. Reed so that he can get the medicines he needs and the nutrition he needs to gain weight. Sorry for such a long explanation!
On a lighter note, here are some pictures of the boys this weekend sporting their favorite teams! I promise that Braden wears more than just polo outfits but it seems that every picture he wears polo. I however cannot say the same for Reed's outfits....he loves to be shirtless!
Braden has really started to develop more of a personality this past week. He also loves to chew on his hands.
He also loves Baby Einstein videos. I thought I would try one the other day and he sat there for 30 minutes watching it.
My mom gave him this ugly tye-dyed bunny and he loves that too. Can't you tell by the expression on his face below:-)