Still Hanging In

We are still here. I finally got a new computer so I should be updating the website more often than once a week!
Little Reed still does not have a new heart but he is doing great! This is his new breathing mechanism for this week. It changes all the time. This is called Vapotherm which looks a whole lot better than the CPAP. He may get a little tired on this so they may rotate between this and the CPAP.
The crazy thing on his head measures the amount of oxygen going to his brain. This is to just make sure that everything keeps functioning like it should.

Braden is already tired of Reed getting all the attention. It is still a toss up for who is going to be more spoiled when this is all said and done. Sweet Brothers! Thanks to nurse Jessie for the boys' WubbaNubs which are the pacifiers attached to the stuffed animals. These are great because the boys can hold on to the animal which helps keep the paci in their mouths.
Happy One Month Birthday on December 12, 2008!

Braden's first snow. I know, I am a terrible mom for having him out without socks on and no blanket. We were only outside for a minute! Hopefully Reed will get home soon so he can experience his first snow if we get another one!! Crazy hats that I will only be able to get away with putting on my boys while they are little. If you know me, you know that I absolutely love Christmas, so I couldn't resist these outfits! This Christmas tree hat is one that someone made for children in the NICU. The ladies at the front desk at Vanderbilt always let me get one for Reed and Braden. We have been able to hold Reed just about every day this week. I LOVE being able to do this. We had him out of his bed the other day for about 6 hours and he tolerated it very well. My dad, a.k.a Paw Paw, holding Reed for the first time. He even held him for over an hour this past Sunday.

Specific Prayer Requests:
1) Reed will stay healthy as he waits for a heart. It is very important for Reed to not get any type of infection. If he were to get an infection, then he would have to be pulled off of the transplant list until the infection is clear. Please pray for him to reamin healthy!!!
2) That a healthy heart will come SOON.
3) Pray for the family that will be making such a selfless decision to give their child's organs to help another child like Reed.
4) That Ryan and I will maintain a balance between watching over Reed, caring for Braden, Ryan 's work, and just going through each day with a positive and grateful attitude!


We owe a huge thank you to friends and family for the food provided, babysitting for Braden, calls of concern, and most importantly the prayers! God is Good!!